The Ally Cadence Trust for Spinal Muscular Atrophy (ACT for SMA)
Located in North East Lincolnshire, ACT for SMA is a charity that aims to protect and promote the physical and mental health of sufferers of Spinal Muscular Atrophy. They do this by providing support, education and practical advice, and fund research into the condition.
Ally Cadence was the daughter of Emma and Karl, the founders of the Ally Cadence Trust for Spinal Muscular Atrophy. She sadly died aged six months, just twelve days after being diagnosed with SMA which is a neuromuscular genetic disease that results in progressive muscle weakness.
ACT for SMA was nominated by our member, Mrs Hartley, whose granddaughter suffered from the disease and died just after her first birthday. After being told that the charity so close to her heart would receive £5,000 she said:
“A huge thank you to everyone who read the application and understood the importance of the work this tiny little charity does to hold out a helping hand, just at the moment when it is really needed.”
Emma Cadence from the charity made this statement about the donation:
“Although the Ally Cadence Trust is a relatively small charity, we do a lot of work across the whole of the UK for families affected by Spinal Muscular Atrophy Type 1. Being a lesser known charity it can be difficult to keep the funding coming in to allow this continued support. We are so grateful to have been both nominated and selected to receive £5,000 from LV=. This will help us to not only purchase more equipment but to help provide these affected families with amazing memories and days out.”
The Encephalitis Society
Put forward by our Member, Miss Harris, the Encephalitis Society provides help, support and advice, as well as raising awareness of encephalitis which is inflammation of the brain. It’s caused either by an infection invading the brain or through the immune system attacking the brain in error.
Miss Harris’ father became ill and unfortunately died as a result of encephalitis which was sudden and devastating for the family. She joined the society and has undertaken many events to raise money for the charity. On hearing the news about the donation she said:
“I’m still shaking from reading your email. Thank you so much that is the most fantastic news.”
Julia Clark from the Encephalitis Society made this comment about the donation:
“The Encephalitis Society are so very grateful for the donation of £5,000 from LV= made as part of the Member Community Fund initiative. For people affected by encephalitis, the Encephalitis Society are THE brain inflammation charity who support, advise and guide people affected through their encephalitis journey, making sure no one faces encephalitis alone. We are encephalitis experts and provide a range of support services including telephone support line, Skype and email help, information and training and tailored events such as our flagship Family Weekend which brings families whose lives have been devastated by encephalitis, together.